I love my husband. It is as simple as that. We’ve been
married 23 years now and I can still say that I am married to my best friend.
He knows my dreams and fears, sorrows and delights, good days and bad. I thank
God daily for bringing this man into my life.
I even came with extra “baggage.” I was divorced and had the
cutest, smartest little three-year old in the world. Bob ended up being
Stephanie’s own Prince Charming. They also had love at first sight. He couldn’t
have been (and continues to be) the best (step) dad in the world. She and Poppy
are quite a pair.
That’s why this diagnosis is so hard on all of us – all
three of us. We are family! We are a unit. To see that man I adore and know he
will silently start slipping away without anything I can do is heart wrenching.
To know that his diagnosis means he will one day turn to me without knowing me
cuts me to the quick. That’s the part I can’t bear to imagine – so I don’t. We
now at least daily look into each other’s eyes and say, “I love you Janet” or “I
love you Bob.” It’s a wonderful habit that I wish we would have done sooner. Doctors
have encouraged me to become well acquainted with our future so I’ve read a
variety of books, listened to CD’s and watched DVD’s. I’ll do all I can to have
us beat this horrid LBD for as long as I can.
There’s one, well there are many, but there’s one thing that
I absolutely can’t understand. Lewy Bodies Dementia is named after Dr. Lewy who
first located the protein that demolishes unsuspecting brain cells. So, they
named it after him. Now don’t get me wrong, this person deserves certain
recognition but is naming a horrid syndrome after a brilliant scientist a good
idea. Name an ice cream flavor after him or a special Subway sandwich.
It hurts that certain friends and family have ignored our
pleas for companionship. Many people have rushed to our sides and will continue
to do so as the months get harder. Yet others are offering help while dashing
in the opposite direction shielding their hearts from LBD, not daring to be close
so it doesn’t rub off on them. Things are still easy now. Please give us a call
or drop us a line if you have the opportunity. Stockpile all the good wishes
into Bob’s brain so they can stand guard against LBD as it silently sneaks its
way through my darling’s brain.
Give us a call. We promise to give you a laugh or two
because my best friend and I believe that life is oh so good.
God Uses Our Love to Prove that Life is Good
Laughter fills our home on
good days and those other ones we try to forget.
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